Wednesday, September 22, 2010

thyriods - what's it good for?

Well, my 6 month follow up appointment to review the Thyroid scan that I had last week was today.  Results are that the nodule on the left has indeed grown, and is now larger than 3.5cm and therefore needs to come out.  So I am now planning to be out of work for 2-3 weeks at the end of October to have 1/2 (the left) of my thyroid taken out.  Last time I saw this dr I wasn't too happy with him or his attitude, he seemed more interested in showing off for some interns he had with him than in talking with me.  Today, it was just him, and he took the time to talk to me, explain things and while I feel he is still egotistical that isn't always a bad thing when you are talking to a surgeon - hey I want him to be the best at what he does too.
It appears there are some risks - that involve the vocal cords and some other things.  According to my doctor he is better than "what the books say" and that there is a less than 2% chance of any issues with him doing the surgery.  That is apparently based on the number of these operations he does.
I'll talk to my brother about what the dr had to say and about the plan for surgery to get his opinion, and/or that of his buddy that does these sort of things there where my brother practices.
I'll also talk to my mom about it.  She will worry, but then according to her, that is her job - mothers are supposed to worry.  At the moment I'm not too worried about any of it.  I'm glad it is just the one side, and that most likely nothing will be done on the other side unless they end up finding cancer on this side.  Apparently the nodes on the right are stable and not growing.  And the other big thing is that I won't be having to have another thin needle biopsy.  I guess I'm saying I'd rather have the surgery than to have them poke another one of those skinny needles in my neck and push it around trying to collect cells.
The one thing I find somewhat depressing is that my thyriod levels are "great", or if anything my thyroid is over producing.  Which I'm told is good sign that the surgery will end up having no effect on my needing thyroid meds.
Oh and one other thing the dr shared was that might not be such a good thing, and that is that the prognosis of this not being cancer does have one problem.  Apparently I'm "old".  Sometimes I do feel old, other times I wonder where the years went, and forget myself.  Anyway, according to the dr who says he's my age, we are above the age where thyriod issues normally show up.  So being mid-late 40's almost 50 is "old". So perhaps I should worry now that there is cancer.  But then why borrow trouble.

Saturday, September 18, 2010

stuff

Been a while since I posted.  Life has been busy.  Which is a good thing.  Spent Labor day weekend camping with M up at the PA Grand Canyon for a 4 day weekend.  Got to site see.  I'm not sure what I expected. But it isn't like the Grand Canyon, but it is a huge gorge.  Lots more forest and trees.  We biked along the rail trail - which parallels the river at the bottom of the gorge.  At most it is a 2% grade.  The temps were cold.  In the 50's and dropped into the 40's at night.  That's cold when you are staying in a tent.  But we did ok.  We have a huge tent - 10'x20' with room to stand in it.  divides into two rooms.  Basically we have more room that many of the RV's that were staying beside us.  The following weekend we took another long 4 day weekend camping trip down to the shore.  Went down in Delaware and stayed at Cape Henlopen which is outside of Lewes.  Again we stayed in the huge tent. Temps were great - in the 60's - 70's.  We biked everywhere from camp.  Some great trails, and unlike roads here at home, they have lots of bike lanes, and are familiar with the idea of sharing the road.  Here in PA where we live, even on the "bike routes" there is rarely a bike lane, and motorists are rude.  Most roads also don't have sidewalks either so if you walk or ride you trust traffic to pay attention.  The weekend before Labor Day we also had a nice weekend, at home, just the two of us.  W had gone off to visit one of his women friends - he's quite the casanova. 
Which is great.  He's a sweet guy, in good shape for 70, and loves life.  Who says life has to end when you get to be a senior citizen.  Apparently that includes an active sex life.  I don't want details, but I'm happy to know he is able to have fun.  Long as no one gets hurt - what's the harm?  One problem he has is trying to juggle mutliple women at the same time.  He is back here now, and has one of his ex's visiting from Co.  But I think he really likes this one that he just got back from visiting.  So guess at some point he will have to decide if he is going to settle down.  M claims that now that we have her dad living with us, I should now understand her better, her sister just says I must be a saint to deal with living with both M & W, LOL.
Right now, I have a slight delima and am having to research a product that W's new g/f is swearing is the cure for everything.  W has bought into the speil, which my gut is saying do you hear "snake oil?" or pyramid scheme? Come on, drink the koolaid and you too can believe.  Apparently there is a whole line of products.  Including some sort of stuff W put on his face which cleared up his rosacea while he was in SC. The juice drink is supposed to give you all sorts of energy, help people with MS, help people with joint problems, all sorts of things.  According to the testimonials W had heard a tape on, all sorts of people gave up all their med's and were able to just drink the juice and were able to walk again, and have energy they never had before, and suddenly live fuller lives.  I was always raised to be a skeptic - if it sounds too good to be true, it probably is, and there is no free lunch, etc.
M however promised W that we would hear and investigate this stuff with an open mind.  Ok, so anything is possible, and there could be something to at least some of this stuff.  So now I'm researching some sort of juice stuff called xango, and mangosteen.  For something that is supposed to be the biggest thing since sliced bread, I've not heard of it before.

Monday, August 30, 2010

Rest & Relaxation

This weekend was a great weekend.  Not that anything truly remarkable happened, but maybe because it was just an ordinary weekend. W has been off playing casanova the past couple weeks so M and I have the house to ourselves.  We both took off Friday, but not to go anywhere or do anything.  Not that we did absolutely nothing, but sometimes M feels the need to have an agenda, somewhere to go, things to do, I sometimes like to just relax and have no plans.  So this weekend we had no real plans.  Friday we got errands ran, and just took care of things that needed to be done during the week but we never seem to have time for while working. 
Saturday we took the bikes down to the Heritage trail and rode 14+ miles, then went to a friend's pool party that afternoon.  The weather cooperated, wasn't unbearably hot.  The trail is shady so that helps! Sun was out and pretty warm at the pool party but then that just made it feel good to jump in the water.  Got to swim a few laps and tease a couple of the dogs that wanted to follow along the side of the pool back and forth... I always loved swiming.  I miss having a pool or a gym membership with a pool.  I did forget though to watch my knee while trying to swim laps.  I have a tendancy to hurt my left knee while kicking unless I either wrap it first or pay close attention and dont kick hard and just use my arms to pull myself along.  Well, I forgot.  But nothing serious.  We had fun. 
Sunday we loaded the bikes up again, and went back down to the trail and this time did 18 miles.  It was a little warmer on Sunday, but there was a nice breeze and of course the shade on the trail.  This was first weekend in over 3 weeks that I was able to get out on one of the trails and ride.  I'd been on-call the previous 3 weekends. 
Riding helps my knees, but then they are stiff afterward.  They were stiff when I woke up Sunday morning, and stiff when I started out riding Sunday, and stiff this morning as I went into work.  By now they have loosened back up.  Relaxing in the Hot tub also helps my arthritis a lot.  I am sooo glad that my MS didn't take that away and I can still enjoy soaking my aching bones in the hot water.  There have been some times, usually in the midst of a flare that I can't tolerate the heat but normally it still feels good.
So here's to rest and relaxation.  And to a great weekend.

Friday, August 27, 2010

the future, predictions, predictability

I posted about being worried because of being denied disability insurance.  But for the moment, I feel pretty good.  As M told me the other day, she's glad I'm as good as I am.  I am sure not going to run any marathons, and some days I limp and hobble along, but that is the bad knees, not the MS.  In some ways, the whole MS thing hasn't really hit home.  Sure I saw the little white lesions on my brain MRI.  Sure, I have had issues with numbness in my feet and legs, some of which will flair back up, I sometimes feel like I walk on a pair of balled up socks under the ball of my feet.  But is it really real? 
I believe that I still have a long productive road ahead, of work, life, etc.  There are a lot things I haven't done yet that I want to do.  So, I am stubborn enough, determined enough, to want to do them.  Right now, M & I are working towards getting healthier, eating better, getting more physically fit, losing some of the excess weight we have both put on over the past few years.  I get frustrated with things that seem to keep jumping in as road blocks - things like breaking my ankle, finding out I have MS, etc. But I'm no quitter.
I have had to learn to reinvent myself several times in my life.  M likes to say I grew up in "leave it to beaver's" household.  In some ways I did.  When I was small both my parents worked, but my mother quit her job and took care of me and the house and my brother by around the time I started school.  My parents were married more than 52 yrs when my dad died.  So yeah, I was fortunate. 
It didn't stop me from wanting to get out and on my own as soon as I could.  I couldn't wait to leave home, to leave the small town and everything behind.  I dropped out of college to get married at 18. I followed my husband overseas where my daughter was born.  We had a very rocky relationship.  Abusive.  I thought many times about leaving and heading back home, but I was too proud.  So I stuck it out.  While overseas, I managed to snag a good job with good pay, as a graphic designer I liked what I was doing. Then I found out I was pregnant.  We came back to the states soon after J was born.  I was trying to figure out if we could make things work.  What the future was going to be.  If I had the guts to leave and strike out on my own again, this time with a baby.  I didn't have to make a choice.  One night the police called to let me know my husband had been picked up.  He was trying to arrange a hit on me for the insurance.  Didn't much care what happened to our daughter, then decided she was worth more to him alive, due to being able to stay in on post housing and out of the barracks. So my choice was made, and I again had to start over. Thankfully my family welcomed me and my daughter til we got back on our feet.  I went back to college and managed to graduate with honors.  I obtained two degrees, one in accounting and the other in computers.  During the final years in college I worked at a local accounting firm, and went there full time and become a CPA after graduation.  I worked hard, raised my daughter and life was good.
After another 7 yrs or so, I guess the 7 yr itch struck, and I also fell for someone who lived 1000 miles away.  I also felt stifled in the small town, in the bible belt where I was raised.  My lifestyle was not that welcomed there.  I met someone online, what started as a friendship, chatting online, exchanging emails and phone calls, and long letters, even trips back and forth across the country turned into a relationship.  So I packed up me & my daughter and we moved.  Once again, my choice in a relationship continued to be lacking, so that didnt last.  M tells me, that it was a necessary step, one that brought me here to meet her.  Perhaps.  I can't argue with that.
M & I have been together almost 10 yrs now. Good years.  When I moved across country 15 yrs ago, I reinvented myself again.  I gave up the accounting which I had come to find tedious and focused on the computers and then branched out into networking and then VOIP.  Most of the time it is work I enjoy.
Whatever happens going forward, I'm not afraid of the future.  It will all end up ok.  I am a believer in good karma if nothing else. 

Wednesday, August 25, 2010

One of those people...

Well.... Crap. I can think of many other words, but that sums it up.  M and I are in the process of getting some of our financial things in order.  I'm basically the bread winner.  What the heck does that mean anyway? Did people enter contests to try to win loaves of bread? Same with bringing home the bacon? But I digress.  It is my income that pays our mortgage and most of the bills.  M most definitely contributes, but we could squeak by without her income, we can't even squeak without mine.  So one of the items on my list of things to check out was something called mortgage disability insurance.  This would pay the mortgage payment if some thing were to happen to me to keep me from working and being able to earn the income needed to pay it.  Sounds good.  Should be easy enough.  I know M had a similar policy a few years back.  So I stopped in to see our insurance agent.  Uh Oh.... I have .... M. S.  which apparently means I can't qualify to get any disability insurance.  She apologied and said she was sorry, but that they can't write policies for that exclusion for any form of disability insurance or life insurance.  Hmmm.... so I couldn't even get life insurance?  Well... I currently have both life insurance and disability insurance through my work.  Wonder if they are still valid? wonder how I would find out? or if I should even open the can of worms to ask?  Sometimes it is nice to play ostrich and stick your head back in the sand.
From what I understand, those policies are still ok, but private insurance won't write policies for "our kind"... you know... the ones with .... M. S. 
What a bummer.  I know I have MS, but really, I'm relatively healthy otherwise.  Ok, I have bad knees thanks to the osteoarthritis, and I'm over-weight.  I am working on the weight thing tho, M & I both have been, counting points with weight watchers, working out, riding our bikes, using our wii. We are doing pretty good with it too.  I've lost 14 lbs since beginning of July.  Still have a lot to go, but that's an accomplishment.
So, hopefully things will continue, and I will still have a lot of productive working years ahead and we won't need to worry about how to pay that mortgage.  The 66% disability from work's policy would be a significant pay cut.  And it really isn't that we couldn't make it on less if we had to, but it would also mean making a lot of changes, downsizing, etc.
We will just have to look at the whole finance thing from all the angles and see where to go from here.  This news doesn't really change anything, but it is still a bummer.  Leaves a little more uncertainty hanging out there. 
Well.... Crap!